Hi folks,
Just wanted to give you a brief overview of what’s been happening with me and why you won’t have seen much of me so far this year. Basically, I was completely pole-axed by a terrible chest infection that came on around the start of February and is still affecting me pretty badly now.
Thankfully I was referred to a chest specialist in April, who did a “washing” of my lungs and found out I had the ‘superbug’ MRSA in my chest. It’s pretty rare to have as a chest infection, so I’m lucky it was found and diagnosed – I’m pretty sure I would have died otherwise, because I was just getting worse and worse. But we also found out it could be treated with one antibiotic, Clarythromycin, so I went onto a month-long course of that – which did such a number on my stomach that I pretty much stopped eating towards the end – everything either made me vomit or made me want to vomit. I lost a load of weight and looked pretty grey – and felt it, too. Then after a month on these vile tablets, the chest specialist did another chest scan and said the infection was gone (hurrah!) but it had left lots of inflammation behind, causing a disease called Cryptogenic Organising Pneumonia. Thankfully, COP can be treated with steroids – you start at a high dose and gradually (very gradually, in my case) bring the dose down as you get better. And one of the side-effects of steroids is that they make you want to eat! So within about 3 days of starting the steroids, at the end of May, I suddenly went from constantly nauseous to wanting to eat everything in sight – a really positive development!
In the meantime, because I’d been so poorly, I’d moved in with my Mum and Dave – I could barely look after myself, let alone look after Luca. The main issue was my breathing, which was really laboured – any exertion made me totally exhausted and I just needed total bed rest. Luckily, we’d discussed beforehand, as a family, what would happen if I couldn’t look after Luca for a time, and Lisa & Tim moved into my house to look after him, as he still had to go to school etc. He went to his dad’s every weekend and it became obvious, fairly quickly, that he wanted to move down and live with his dad – and that was what his dad wanted, too. So we all decided that was the best idea, in the long run, and so he moved down there straight after breaking up from school on Friday! At the moment I think we’re all feeling very positive about the move – I’m still not up to doing much, so I’m getting the rest I need, and Luca’s with his dad, who can do a lot more with him than I can. I think it’ll take a while for all of us to really get our heads around such a big change, but for now it feels like the right thing.
On the cancer front, I’m now on a treatment that takes a two-pronged approach – anti-hormone injections called Faslodex once a month, plus daily pills called Verzenios (abemaciclib), which cut off a protein that the cancer needs to grow – and it seems to be working. I started off at a low dose, because of my breathing and stomach issues, but I’ll hopefully be going up to the full dose when I next see my oncologist, at the end of July.
So, things have changed and are changing, and we’ve all been through a scary, difficult time, but we seem to be emerging into the light again. I’d like to say thank you to all my very nearest and dearest for being such amazing support (as ever), and I’m sorry if anyone thought I was avoiding them – I was! But only in a self-preservation way – I couldn’t have visitors, really, as it exhausted me too much, so I kept as quiet as possible. But hopefully, as my strength returns, so will my sociability and I can reconnect with everyone.
Onwards, inwards, upwards – and lots of love to you all xxx